The Support of a Dazzling Community

Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.

Zebra Wrangling: Managing those pesky symptoms

In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More

After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That … More

For most of her life, she had experienced pain. Pain that other people said couldn’t exist.