Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More
After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That … More
Walking hurt, so I stopped walking. When it stopped hurting as much, the pain was replaced with neuropathy and when I walked, I began falling. The day before my 52nd birthday, a powerchair was prescribed. I waited with bated breath for the freedom that it offered.