In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More
For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary … More
For weeks we worked with my physicians to discover that although my swallow reflex was completely intact, I could no longer feel that area of my throat, which caused me to panic.
Wow! I had to look back at the last time I had posted a blog here, I thought I had … More
Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?
Walking hurt, so I stopped walking. When it stopped hurting as much, the pain was replaced with neuropathy and when I walked, I began falling. The day before my 52nd birthday, a powerchair was prescribed. I waited with bated breath for the freedom that it offered.
When I think back to my life, just 19 months ago… camping… Something I don’t know if I will ever be able to do again…thanks to an antibiotic…
When I returned to my home state of Washington in July 2017, my broken, disabled body was less able than … More