In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was born. It had been over a year since I had … Continue reading Zebra Wrangling: Managing those pesky symptoms

In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was born. It had been over a year since I had … Continue reading Zebra Wrangling: Managing those pesky symptoms
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That is what doctors in training are taught. (To listen click … Continue reading Diagnosis: Zebra
Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?
Walking hurt, so I stopped walking. When it stopped hurting as much, the pain was replaced with neuropathy and when I walked, I began falling. The day before my 52nd birthday, a powerchair was prescribed. I waited with bated breath for the freedom that it offered.
When I returned to my home state of Washington in July 2017, my broken, disabled body was less able than it had been in years. My first order of business … Continue reading A Bad Drug