Caring for Me

She was only 18 when she started-But our bond would grow tighter than I could imagine

The Quality of My Life

Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?

Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.

In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More

For the second year, Ehlers-Danlos awareness is my goal for May Last year I participated in my first Ehlers-Danlos Syndrome … More

It was only days after my official autism diagnosis that I felt compelled to download and install an app I … More

I have made no secret of the fact that I endure a considerable amount of pain in relation to my Ehlers-Danlos … More

After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That … More

For most of her life, she had experienced pain. Pain that other people said couldn’t exist.