The Quality of My Life

Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?

Zebra Wrangling: Managing those pesky symptoms

In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More

For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary … More

After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That … More

Wow! I had to look back at the last time I had posted a blog here, I thought I had … More

Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?

When I think back to my life, just 19 months ago… camping… Something I don’t know if I will ever be able to do again…thanks to an antibiotic…