Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?
Tag: Ehlers-Danlos Awareness
Wrapping Up A Month of Awareness and Preparing for Pride
It’s been a month! Thanks for connecting to me and for taking your time to read the posts I’ve shared. … More
The Support of a Dazzling Community
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
The Value of Visibility
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of … More
Zebra Wrangling: Managing those pesky symptoms
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More
What I Wish Everyone Knew About Ehlers-Danlos
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
My Path to Diagnosis
For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary … More
Meet Me: EDS in May
For the second year, Ehlers-Danlos awareness is my goal for May Last year I participated in my first Ehlers-Danlos Syndrome … More
Luered to TikTok for Advocacy
It was only days after my official autism diagnosis that I felt compelled to download and install an app I … More
A Balm for the Bruises and Bends:
Managing My Ehlers-Danlos with Cannabis I have made no secret of the fact that I endure a considerable amount of … More
Maggie Slighte 