Zebra Wrangling: Managing those pesky symptoms

In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More

My Path to Diagnosis

For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary … More

After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That … More

Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?

When I think back to my life, just 19 months ago… camping… Something I don’t know if I will ever be able to do again…thanks to an antibiotic…