Caring for Me

She was only 18 when she started-But our bond would grow tighter than I could imagine

The Support of a Dazzling Community

Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.

Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of … More

In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More

It was only days after my official autism diagnosis that I felt compelled to download and install an app I … More

Before I go too far, let me preface this. Unlike some of my articles that have been extensively researched, this … More

For most of her life, she had experienced pain. Pain that other people said couldn’t exist.

The reality of living in the Pacific Northwest as a disabled person during a housing crisis In October 2018, the … More

Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?

When I think back to my life, just 19 months ago… camping… Something I don’t know if I will ever be able to do again…thanks to an antibiotic…