Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
Tag: disability
The Value of Visibility
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of … More
Zebra Wrangling: Managing those pesky symptoms
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More
Luered to TikTok for Advocacy
It was only days after my official autism diagnosis that I felt compelled to download and install an app I … More
My Bendy Brain: Mental Health and Ehlers-Danlos
Before I go too far, let me preface this. Unlike some of my articles that have been extensively researched, this … More
Owning Her Stripes
For most of her life, she had experienced pain. Pain that other people said couldn’t exist.
Waiting for a Home I Can Use
The reality of living in the Pacific Northwest as a disabled person during a housing crisis In October 2018, the … More
These Antibiotics are Killing People Every Day
Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?
Revisiting A Bad Drug – One Year Plus After an Antibiotic Injury
When I think back to my life, just 19 months ago… camping… Something I don’t know if I will ever be able to do again…thanks to an antibiotic…
Continuing My Education
For the last six months I struggled with the decision whether to continue into a graduate program or to be … More