Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary … More
For most of her life, she had experienced pain. Pain that other people said couldn’t exist.
Ten years ago, I began a war against a drug that now takes the life of thousands daily
Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?
Walking hurt, so I stopped walking. When it stopped hurting as much, the pain was replaced with neuropathy and when I walked, I began falling. The day before my 52nd birthday, a powerchair was prescribed. I waited with bated breath for the freedom that it offered.
When I returned to my home state of Washington in July 2017, my broken, disabled body was less able than … More
I have written many Facebook posts that started with the quote, “To Stand UP to LIVE you must first get … More