Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
Tag: chronic pain
Zebra Wrangling: Managing those pesky symptoms
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More
What I Wish Everyone Knew About Ehlers-Danlos
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
My Path to Diagnosis
For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary … More
Owning Her Stripes
For most of her life, she had experienced pain. Pain that other people said couldn’t exist.
10 Years After My War on Drugs
Ten years ago, I began a war against a drug that now takes the life of thousands daily
These Antibiotics are Killing People Every Day
Do you read the paperwork that is handed to you by your pharmacy when you get a new prescription?
A Power Chair Gave Me Back My Life
Walking hurt, so I stopped walking. When it stopped hurting as much, the pain was replaced with neuropathy and when I walked, I began falling. The day before my 52nd birthday, a powerchair was prescribed. I waited with bated breath for the freedom that it offered.
A Bad Drug
When I returned to my home state of Washington in July 2017, my broken, disabled body was less able than … More
Get Thine A$$ Outta BED!
I have written many Facebook posts that started with the quote, “To Stand UP to LIVE you must first get … More
Maggie Slighte 