When I returned to my home state of Washington in July 2017, my broken, disabled body was less able than it had been in years. My first order of business was to make appointments with both my primary care practitioner and my pulmonologist. My asthma had been flaring, causing me to spend at least one day in an emergency room each month to seek breathing treatments.
The result of my July visits was a diagnosis of pansinusitis with a complete obfuscation of ALL of my frontal sinuses. My prescriptions for my inhalers were renewed and I received two new prescriptions, one for a steroid, prednisone, to lessen the inflammation inside my sinuses and an antibiotic, levofloxacin, (generic for Levaquin) to clear the infection.
I was staying with a friend to help her pack and clean the house she was vacating and set about taking my first round of tablets hoping for a quick recovery. That night as I scrubbed the driving callus on my right heel that looked worse than it felt, I felt pain in my heel and ankle felt fragile and odd, but I didn’t do anything except note it in my journal.
The next morning, I felt like a train had hit my body and brain. My brain was confused and every muscle and joint in my body hurt. However, both of my physicians had made a point of telling me that the pansinusitis was “probably causing me considerable system-wide fatigue and pain.” So, I chalked up these symptoms to my body reacting to me stopping long enough to feel it.
As my body seemed to weaken, I was embarrassed at the lack of work I was physically able to complete. It wasn’t like me. Yes, I need to take a lot of breaks, but I am a bit of a perfectionist where it comes to packing and cleaning, and it was taking me hours and hours longer than it should have. I apologized to my friend.
About a month later, I revisited my pulmonologist who saw no improvement in my infection and again prescribed the same combination. Again, I took and finished that ten-day course. But my sinuses were still completely full and now my joint pain was even worse. Then my pulmonologist referred me to an ear, nose and throat specialist who prescribed Prednisone and Levofloxacin for 21 more days.
I couldn’t understand how a longer course of the same antibiotics I had been on was going to do any good, but I acquiesced took the prescribed medication once again.
I will add, when I filled my prescriptions at the Walgreens’s pharmacy, the only thing that was said to me was “do you want me to throw away all these papers,” referring to the medication information in the bag of my prescriptions.
Two days before my 51st birthday, I traveled to my medical clinic for a follow-up appointment with my pulmonologist as well as an appointment with a new primary care provider. I expressed to both physicians that I was experiencing a HUGE amount of pain in my joints and fatigue that caused me to feel like I had been hit by a semi-truck from the moment I woke each and every day. Each of my steps that hit the ground was followed by knives shooting up my heel and the back of my leg, then into my knee and hips. After a few feet of walking, I wanted to cry. The pain and swelling in my hands, wrists, and arms made any household chore next to impossible.
Both mentioned they thought the tendinopathy I was describing and which my primary care provider had examined and verified in my hands, wrists, elbows, knees, and heels could be the reaction for which the Levofloxacin and its entire family of antibiotics was deigned to carry a “black box warning” from the Federal Drug Administration (FDA). A “black box warning” denotes a serious reaction history and a limitation from the FDA in a medication’s usage. In relation to the class of drugs of which Levofloxacin was a member, the warning was issued almost one year to the date of my exposure. It read:
“Because the risk of these serious side effects generally outweighs the benefits for patients with acute bacterial sinusitis, acute exacerbation of chronic bronchitis and uncomplicated urinary tract infections, the FDA has determined that fluoroquinolones should be reserved for use in patients with these conditions who have no alternative treatment options. For some serious bacterial infections, including anthrax, plague, and bacterial pneumonia among others, the benefits of fluoroquinolones outweigh the risks and it is appropriate for them to remain available as a therapeutic option.”
My pansinusitis was not anthrax or the plague…however, I have multiple antibiotic allergies and have reacted to many different medications. Due to this fact, my physicians rationalized it would be okay to risk my well-being because of an infection that was not fatal. In fact, I had that same active sinus infection for months before any treatment. However, after the prednisone and levofloxacin, I felt worse than I had EVER felt with the infection.
As days turned into weeks, then months, I started to cry when my feet hit the floor and it was not only not any better than the day before but felt like it had gotten worse. I was no stranger to chronic pain, having been through the gauntlet with chronic pelvic pain for decades and back pain for years. I had written REPORTS about chronic pain and cannabis. I KNEW the timeline of pain. I KNEW when pain becomes chronic, the brain changes. Although my body and brain had already gone through that process for a few injuries, I did NOT want that paradigm to repeat with BODY-WIDE pain!!
My nights were not restful at all. I would roll to one side and my elbow would feel like it was full of glass pieces and if I rolled onto it, they would only go deeper into my flesh… The other elbow was on fire. My wrists and hands swelled making typing insanely difficult as my Master of Arts program began in late November. Although I had some accommodations in place for my previously diagnosed limitations, I found myself utilizing the dictation software. It was frustrating and ineffective, to the point I reached out to an online group for my university and a wonderful undergrad student offered to type my dictation over the phone.
For the pain, I was limited to cannabis. I will not use opioids after having been in recovery from them for the last 8 years and the other issues with the other medications prescribed for pain are what caused my physicians to initially recommend cannabis as my medication.
I’ve been working on recipes for topicals and bath bombs with this pain. A foot soak with a tablespoon of cannabis-infused coconut oil and Epsom salt is a good substitute when I don’t know if I can pull myself out of the tub.
I wanted to do something more to assist my own recovery, but I feared to damage my tendons more. I read about microcellular damage inside of my tendons and feared them tearing or worse. I requested physical therapy for my body and occupational therapy for my hands to get me started. My psychotherapist was also used to assist with the mental confusion caused by the medication interaction/injury. Throughout this last December and January, I had therapy appointments three days a week! Still, every morning, as I put my feet out of bed and onto the floor, the pain would shoot up, and I would cry. Like the mercury in a thermometer that has been placed in boiling water, the pain shot up my heels. Yes, worse again.
I was in the middle of my finals week for that first term in my Master of Arts program when I woke up, put my feet on the floor, and …. It was about the same as the previous day. The next day, after my exercises and stretching, it almost felt better. I was reluctant to hope, but I had stopped crying. At this point, it had been over six months since the first prescriptions.
The occupational therapist confirmed the swelling in my forearm and wrist had lessened. Two days later, the physical therapist confirmed that my Achilles’ tendons had more movement. FINALLY!
I’m FINALLY on the road to recovery. I have never developed so much empathy, so quickly, for any group of people. I have many friends who have chronic illnesses that come complete with body-wide intense pain. I wish I didn’t have to know, but I do understand comprehensively at this point. I am looking forward to healing from this injury and spreading the word about this medication and its PAINFUL interaction with prednisone and some people’s chemistries! Levofloxacin is a BAD BAD DRUG!
Every choice I make is seemingly up for public scrutiny purely based on my un-housed status. The fact is, before I was using cannabis I didn’t have the energy or strength to get out of bed, let alone travel the country. It was the use of the herb that allowed me my freedom: Once I had conquered the need for physical comfort my options regarding my living circumstances opened up. Until I left that disability bed zoned out on narcotics, I had not travelled hardly at all. Making the choice to travel, to be homeless, allowed me to get out of my home state of Washington and visit the country from one end to the other!
I have HOPE. I live with faith. I know that I have a Heavenly Father who loves me and watches over me. Using that hope and faith, I am working on bettering myself. When I realized that strangers would actually be interested in reading what I write, I took it upon myself to start a program at a college with an online presence, Southern New Hampshire University, to finish my Bachelor’s degree with a focus on nonfiction writing. It was time to learn how to use this gift God gave me.
About 4 years prior to that breakdown, while I was still on Fentanyl, percocet, neurontin (gabapentin), and 16 other medications, a friend asked me if I had ever tried marijuana for my pain. I had used it as a teenager, then as a young adult when I wanted to drink and party with my friends, noticing it’s anti-emetic properties allowed me to drink when I was taking medications I should not have been drinking with (my bad!), but I had put my “stash” far away when I began having pain that completely ruined my life… overtaking every aspect, finally putting me in bed. It was in that bed that I lived. A life consisting of watching DVDs from the library (I could check out an entire season of a television program at a time) and Netflix. When I could focus. When I said to my friend, “but won’t it make me unable to do anything?” She told me to look around at my life. That was a sobering experience. 
were ready to put their license on the line by recommending it (the marijuana alternative to “prescriptions” due to the federal illegality it can not be “prescribed”). So, they referred me to a specialist that JUST recommended marijuana.
Harley Davidson (2002 Low Rider)! Riding on the wind was so much more freedom than I could have imagined. My disabilities still had me bed-bound 5/7th of the week, but for 2 days each week I felt like I was LIVING again!
The paramedics arrived, taking my blood pressure both they and I were surprised I was conscious: 50/30 are numbers I won’t forget. After they loaded me up and took me into the hospital, my husband at the time demanded my release before I could be admitted to a rehab, he needed me at home was the excuse. The nurses looked at me like a junkie. They all looked at me as an addict, not as someone who was dependant on a medication prescribed by the doctor… I felt lower than dirt and went home with a prescription of clonidine (a blood pressure medication to LOWER my blood pressure from the impending pain) knowing I would likely be committing suicide to take it.
My pain was MUCH better, lowering to about a 6 or a 7 within a half hour… then I began LIVING!!! Out of bed, I started looking around me to see what I was missing. I was missing out on LIFE!
Somehow, through the Grace of God, I was able to put my MASSIVE social anxiety aside and get on a train, then a bus and a plane, finally in my own vehicle to visit many of them. What I found was that all around the country there were people like me in pain physically and emotionally who needed a reason to live. A reason and a method to Stand Up To Live. That is why I travel to this day: To show it can be done.
