A Darkness Within the Light

About a week ago, I asked my therapist how long this particular Major Depressive Episode had been going on. Without a pause, she answered, “Since the summer.” I could have saved a bit of time and checked the publication date of my last blog post — on ALL of my blogs. I have not written except for assignments for school, since summer.

“Since summer,” the words rang in my head.

I thought back to summer. My summer was great! In July three grandmas (including me) took four grandkids on a ferry boat to Vashon Island where I spent some of my teen years. Then, in August, my mom and I trekked to Alberta, Canada to see the area where her mother was born. We also drove back through the forest fires in British Columbia, resulting in my second case of pneumonia within a year. This time I was not to recover nearly as quickly as I had the previous Christmas.

As the infection abated in early September, I found I was not able to physically care for myself. The symptoms I thought were lessening from the Fluoroquinolone toxicity had started again to worsen while we were in Canada and kept getting worse until I could barely lift my left arm. My left shoulder was “frozen.” 

I finally requested help. I had no idea AFTER you humble yourself and ask for help, it can take literally months before help arrives! I applied for home health care through the state process in early September. In November, my physician was fed up with the lack of movement on my case and made her own recommendations and referrals. It was interesting being the subject of “Adult Protection Services” at the mere age of 52. 

“Carrie the Caregiver” and me celebrating “Blue Friday” #GoSeahawks

I sit here now, on December 15, finally having employed a wonderful home health care assistant with the help of my local assistance office. I have left a large part of my privacy and pride far behind as I am venturing into the life of having a “PCA” (Personal Care Assistant). But I am finding that I am also making some great new friends as well as getting my life back.

Another change will be coming soon. After suffering several significant falls (not just saying “hello” to my good friends–my walls), my doctor has suggested that I sit down. The pain, numbness, and weakness in the tendons of my feet and legs have progressed to the point where a powerchair has been prescribed. I will make sure to post with photos when it arrives!

Jaina Anita Ellen Capley Grandchild #4 (Photo by Siobhan Capley – Jaina’s mama)

This holiday season has been a dark one for me, but I am coming back into the light.  This will be the first Christmas for my newest granddaughter, Jaina Anita Ellen Capley, and I plan on enjoying her and the rest of the grandchildren to the fullest!

I hope everyone reading this has a wonderful holiday season. Please don’t let the shadows pull you in. 

A Bad Drug

When I returned to my home state of Washington in July 2017, my broken, disabled body was less able than it had been in years. My first order of business was to make appointments with both my primary care practitioner and my pulmonologist.  My asthma had been flaring, causing me to spend at least one day in an emergency room each month to seek breathing treatments.Prescription bottle for levofloxacin 10 days and tablets with prednisone tablets

The result of my July visits was a diagnosis of pansinusitis with a complete obfuscation of ALL of my frontal sinuses. My prescriptions for my inhalers were renewed and I received two new prescriptions, one for a steroid, prednisone, to lessen the inflammation inside my sinuses and an antibiotic, levofloxacin, (generic for Levaquin) to clear the infection.

I was staying with a friend to help her pack and clean the house she was vacating and set about taking my first round of tablets hoping for a quick recovery. That night as I scrubbed the driving callus on my right heel that looked worse than it felt, I felt pain in my heel and ankle felt fragile and odd, but I didn’t do anything except note it in my journal.

The next morning, I felt like a train had hit my body and brain.  My brain was confused and every muscle and joint in my body hurt. However, both of my physicians had made a point of telling me that the pansinusitis was “probably causing me considerable system-wide fatigue and pain.” So, I chalked up these symptoms to my body reacting to me stopping long enough to feel it.

preview-4.jpgAs my body seemed to weaken, I was embarrassed at the lack of work I was physically able to complete. It wasn’t like me. Yes, I need to take a lot of breaks, but I am a bit of a perfectionist where it comes to packing and cleaning, and it was taking me hours and hours longer than it should have. I apologized to my friend.

About a month later, I revisited my pulmonologist who saw no improvement in my infection and again prescribed the same combination. Again, I took and finished that ten-day course. But my sinuses were still completely full and now my joint pain was even worse. Then my pulmonologist referred me to an ear, nose and throat specialist who prescribed Prednisone and Levofloxacin for 21 more days.

I couldn’t understand how a longer course of the same antibiotics I had been on was going to do any good, but I acquiesced took the prescribed medication once again.

I will add, when I filled my prescriptions at the Walgreens’s pharmacy, the only thing that was said to me was “do you want me to throw away all these papers,” referring to the medication information in the bag of my prescriptions.

Two days before my 51st birthday, I traveled to my medical clinic for a follow-up appointment with my pulmonologist as well as an appointment with a new primary care provider. I expressed to both physicians that I was experiencing a HUGE amount of pain in my joints and fatigue that caused me to feel like I had been hit by a semi-truck from the moment I woke each and every day. Each of my steps that hit the ground was followed by knives shooting up my heel and the back of my leg, then into my knee and hips. After a few feet of walking, I wanted to cry. The pain and swelling in my hands, wrists, and arms made any household chore next to impossible.

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Braces made by my occupational therapist. I had to remove one brace to take the photo

 

Both mentioned they thought the tendinopathy I was describing and which my primary care provider had examined and verified in my hands, wrists, elbows, knees, and heels could be the reaction for which the Levofloxacin and its entire family of antibiotics was deigned to carry a “black box warning” from the Federal Drug Administration (FDA). A “black box warning” denotes a serious reaction history and a limitation from the FDA in a medication’s usage. In relation to the class of drugs of which Levofloxacin was a member, the warning was issued almost one year to the date of my exposure. It read:
“Because the risk of these serious side effects generally outweighs the benefits for patients with acute bacterial sinusitis, acute exacerbation of chronic bronchitis and uncomplicated urinary tract infections, the FDA has determined that fluoroquinolones should be reserved for use in patients with these conditions who have no alternative treatment options. For some serious bacterial infections, including anthrax, plague, and bacterial pneumonia among others, the benefits of fluoroquinolones outweigh the risks and it is appropriate for them to remain available as a therapeutic option.”preview-3.jpg

My pansinusitis was not anthrax or the plague…however, I have multiple antibiotic allergies and have reacted to many different medications. Due to this fact, my physicians rationalized it would be okay to risk my well-being because of an infection that was not fatal. In fact, I had that same active sinus infection for months before any treatment. However, after the prednisone and levofloxacin, I felt worse than I had EVER felt with the infection.

As days turned into weeks, then months, I started to cry when my feet hit the floor and it was not only not any better than the day before but felt like it had gotten worse. I was no stranger to chronic pain, having been through the gauntlet with chronic pelvic pain for decades and back pain for years. I had written REPORTS about chronic pain and cannabis. I KNEW the timeline of pain. I KNEW when pain becomes chronic, the brain changes. Although my body and brain had already gone through that process for a few injuries, I did NOT want that paradigm to repeat with BODY-WIDE pain!!

My nights were not restful at all. I would roll to one side and my elbow would feel like it was full of glass pieces and if I rolled onto it, they would only go deeper into my flesh… The other elbow was on fire. My wrists and hands swelled making typing insanely difficult as my Master of Arts program began in late November. Although I had some accommodations in place for my previously diagnosed limitations, I found myself utilizing the dictation software. It was frustrating and ineffective, to the point I reached out to an online group for my university and a wonderful undergrad student offered to type my dictation over the phone.

IMG_20150909_123512744For the pain, I was limited to cannabis. I will not use opioids after having been in recovery from them for the last 8 years and the other issues with the other medications prescribed for pain are what caused my physicians to initially recommend cannabis as my medication.

I’ve been working on recipes for topicals and bath bombs with this pain. A foot soak with a tablespoon of cannabis-infused coconut oil and Epsom salt is a good substitute when I don’t know if I can pull myself out of the tub.

I wanted to do something more to assist my own recovery, but I feared to damage my tendons more. I read about microcellular damage inside of my tendons and feared them tearing or worse. I requested physical therapy for my body and occupational therapy for my hands to get me started. My psychotherapist was also used to assist with the mental confusion caused by the medication interaction/injury.  Throughout this last December and January, I had therapy appointments three days a week! Still, every morning, as I put my feet out of bed and onto the floor, the pain would shoot up, and I would cry. Like the mercury in a thermometer that has been placed in boiling water, the pain shot up my heels. Yes, worse again.preview-1.jpg

I was in the middle of my finals week for that first term in my Master of Arts program when I woke up, put my feet on the floor, and …. It was about the same as the previous day. The next day, after my exercises and stretching, it almost felt better. I was reluctant to hope, but I had stopped crying. At this point, it had been over six months since the first prescriptions.

The occupational therapist confirmed the swelling in my forearm and wrist had lessened. Two days later, the physical therapist confirmed that my Achilles’ tendons had more movement. FINALLY!

I’m FINALLY on the road to recovery. I have never developed so much empathy, so quickly, for any group of people. I have many friends who have chronic illnesses that come complete with body-wide intense pain. I wish I didn’t have to know, but I do understand comprehensively at this point. I am looking forward to healing from this injury and spreading the word about this medication and its PAINFUL interaction with prednisone and some people’s chemistries! Levofloxacin is a BAD BAD DRUG!preview-2.jpg

 

A Medical Marijuana Mormon

Although I have talked a bit about the fact that I never wanted to be a “medical marijuana Mormon” or how I didn’t want my Testimony “tainted” green, I have not talked much (except by video) about why I willingly took on the moniker, “Medical Marijuana Mormon” at least in the choice of URL. (You can also reach this site by typing in MedicalMarijuanaMormon.com)wp-1485625896850.jpg

When I made the decision to purchase MedicalMarijuanaMormon.com as well as MaggieSlighte.com last January, I was taking a social media marketing class for writers in my bachelor’s program. I learned many techniques and improved some that I had already been working on developing.

I have been a “medical marijuana Mormon” since the day I was Baptized a Mormon, but it wasn’t until my own trial about the herb when I decided research I had performed might be useful to many other members of The Church of Jesus Christ of Latter-day Saints when making the decisions about using cannabis as a medicine for themselves or a family member.

Two weeks to the day from the date I received my Endowments in the Seattle Washington Temple, I fell profoundly backwards 10 feet from the top of an attic ladder, incurring a compression fracture of my T-11, essentially “breaking my back.” What few people in the church knew about me at that time is that I was a medical marijuana patient. I had been even before I was Baptized.

Before I was even interested in The Church of Jesus Christ of Latter-day Saints, I knew medical cannabis patients who were Mormon. In fact, the seventh legal patient in Washington State was a Mormon and was a dear friend of mine. From him I first heard the words “The Church says it’s an herb, treat it as such,” meaning that smoking it is discouraged, but ultimately the route of administration is between the patient (member), their physician and God.

IMG_20120915_194030Contrary to many beliefs, there are many and varied reasons that a physician may direct a patient to inhale their medication. Although “vaping” or vaporizing is preferred to smoking or combusting cannabis in the administration of the medication, inhalation can be useful when attempting to bypass competing digestive liver enzymes. The simple fact is that when inhaled, the liver is not involved in the absorption and for many reasons this can be helpful. But I digress.  I will be including information about this in the book I am currently working on, Medical Marijuana for Mormons: Cannabis sans combustion. Topicals are a great option for patients needing to avoid the liver-involved administration as well! In fact, topicals are the least-used and most effective forms of cannabis medication!

When I broke my back, my cannabis use came “out of the closet” during an interview between myself, my husband and our Bishop. When the Bishop offered to help find a program to assist with the costs of my prescriptions, he soon realized that wouldn’t be possible. I had been in recovery, off the opioid medications Fentanyl, Percocet and Vicodin which I had been prescribed for over 7 years between 2002-2009, for five years. My physicians all agreed: I couldn’t take opioids even for the back pain. I was recommended a strong preparation of cannabis oil and given muscle relaxers as well.

My Bishop was new to this country and to the cannabis laws. My state had recently legalized “recreational cannabis” and that seemed to confuse things with the Bishops even more. He referred the matter to our Stake President. The Stake President in the Centralia area had been in place for over a decade. His politics were not liberal in the least. He had NO love for cannabis.

My Bishop was directed by the Stake President to take my Temple Recommend.

I was devastated.

As the Bishop took the Recommend from my hand, I saw the tears in my eyes echoed in his own. Neither of us felt The Spirit in the action, but we would both be obedient. He obediently took my Recommend, I obediently gave it.img_20151001_100743

An interjected third person in the equation was my non-Priesthood holding husband of the time. He was offended and he was loud about it. He made a point to tell anyone who would listen that we were forced to kill our plants and shop from the local dispensaries instead of growing our own which was a much more affordable option available to us legally in our state as patients.

It didn’t matter how patient I attempted to be while I healed from my back injury, the scenes that my husband made at church became embarrassing. His actions did NOT echo my feelings. I knew it would be resolved in God’s time. But the husband I was married to then didn’t believe in waiting for God for much of anything.

Late in August, after being without my Temple Recommend for about a month, Stake Conference was held in Centralia, Washington. I invited a good friend of mine who is “fifth-generation LDS,” and was thankful for his perceptions. Elder L. Tom Perry had celebrated his 92nd birthday that week. We didn’t know that would be his last birthday on this side of the veil.

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Elder L. Tom Perry from LDS.org

Elder Perry was a giant of a man standing at the podium I peeked in from the door at the side of the chapel. I stayed in the foyer contained within my steel cage of a back brace with the walker that I still depended upon. I was happy with my viewpoint as the Stake appeared to receive a rebuke. He gave us a lesson in who reports to whom in the Priesthood offices. He tested the Priesthood holders in their knowledge of their duties and charges. He taught us all with an abundance of love. Elder Perry taught us about obedience. Then he replaced the Stake President, informing us of Brother Smith’s call to the Stake Presidency. President Smith’s day job was an FBI agent. He worked for the Federal Government.

I can’t remember if it was the next Sunday or the Sunday thereafter when my Bishop called me to his office and joyfully handed me my Temple Recommend back. We had both survived the trial.

I learned a lot during that trial. I received a Priesthood blessing when I fell. That blessing, given by the Elders of the Centralia Ward in late May 2014 on my mother’s front lawn while I lay on a gurney ready to be loaded up into the ambulance that awaited, specified that I needed to follow my physician’s advice and I would be healed. I followed the advice of my doctors and I endured a trial of my faith, and I healed. I learned to walk again and I live to this day with about the same amount of “able-ness” as I had previous to breaking my back.IMG_20120927_205912

I was left with the feeling much of the research I have performed in my own health-information-gathering could be very useful to others. I was also left thinking about the number of children who are finding relief from severe epilepsy and violent forms of autism with cannabis medications. I decided at that point to write a book called Medical Marijuana for Mormons: Cannabis sans combustion, both to educate other Latter-Day Saints about the herbal medication but also to help those who were in the process of a trial or making the decision to move to an area where the herb is legal for medical use.

I have completed the outline and a few of the chapters. Research for the book is ongoing due to the fact that new studies are coming to light daily about the botanical medication.

IMG_20120915_213049Being a “Medical Marijuana Mormon” doesn’t mean my testimony of Jesus Christ, Heavenly Father and the Holy Spirit is any less. My testimony is strong. I know my Heavenly Father knows and loves me and created me exactly the way He wanted me. He is the reason I want to share what I have learned about this herb He created. I know His love is in the compassion that people who are in pain feel from this plant. I know it is a gift from Him. It is my job to do my utmost to educate myself and others through publishing this book.

Thank you for your interest and your time. I will continue to post progress notes on the Facebook page Medical Marijuana for Mormons: Cannabis sans combustion as well as on this site!
 

 

 

A Home of My Own

A couple of days ago I signed the first rental lease I have signed in over 15 years. I was handed the keys to a small one bedroom apartment in the same complex where I had rented my first apartment 31 years before. It felt very circular, almost as if God was giving me an opportunity to try again.IMG_20170922_150821

This time I am on my own. Yes, I have my dogs, Athena and Ruger Bear (who turns a year old in just a few days!), but before now I had NEVER lived without other humans. When I first moved into this complex 31 years ago, I was a young working single mom with two preschoolers. My sons were only 2 and 4 years old when we moved into the larger two bedroom unit that I now look upon every time I come out of my stairwell.

My memories of this area and this complex are all good ones and I am very happy to be making more on my own now.  I was drawn to this area, the same where I was born, because of many reasons. My only family who are members of the church I attend are in this area and I love to be able to share my Sundays with my granddaughters and Sister grandma. It is also centrally located with most of my close family being in this general area.

20170920_131758_HDRSeven years ago exactly, I made the decision NOT to confine myself to a rented room in a new friend’s home. This year I made a very different decision, I decided to go inside. I am tired. It’s been a long seven years. I have traveled across the country more times than I can count. I have loved, I have lost, I have met more people than I could have ever imagined. I have made friends across the country and around the world. I have been hurt, I have felt joy, I have seen and done more of life than I could have ever imagined in seven years. Now, it is time to write it all out. Having a place to be comfortable while I do that is crucial.

I have learned that I can tip Maslow’s pyramid on it’s head and I can still graduate from college Cum Laude. I have also learned I am not as physically able as I would love to be. Yes, I still cope with chronic and continuous pain and physically disabling conditions as well as psychological issues that have not benefited from the lifestyle I have lived these past years.20170920_131758_HDR

My physical health was made tremendously worse by my choice of living situations. Major mold exposures combined with allergies and asthma to cause me sinus and lung issues that are currently being further evaluated. In consideration of my mental health, I was finally able to find a therapist who takes my insurance and is close. Everything is coming together.

Now comes the writing of the books in earnest. Two have been outlined and started, with a couple of chapters being written while on the road. I appreciate greatly not only all the support and assistance that friends and my church have given, but especially the prayers. God knows my name. It is HE who I have to thank for all of these wonderful blessings that have been bestowed upon me by His human angels.

IMG_20170907_020151_101I hope everyone has the opportunity to feel this blessed once in their lives!!!

Want to see it? Click HERE to see a tour of my new digs right after I got the keys!

No Longer Unfinished

Thirty-one years ago I went to college. As I have previously written, I did not finish either that time or the time after that. When I had my community college transcript analysed to see if I had enough credits to continue on with my Bachelor’s without ever finishing an Associates Degree, I was informed that although I had never finished an Associates Degree, I HAD finished enough classes to start finishing my Bachelor’s Degree!

This week I finally finished my Bachelor of Arts degree with a focus in nonfiction writing! Thirty-one years after starting college, I FINISHED my undergraduate education! This may not seem important or “big” to other people, but for a person who doesn’t seem to finish much of what she has started in her life (I hear it is an “ADHD thing”), to actually FINISH my Bachelor’s, even though I walked for graduation in May, is a very big thing to me.

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I almost disappointed myself again, having a breakdown in the middle of one of my least-favorite classes in my entire college career: International Relations. However, I mustered through with a “C” then came back strong with an “A” out of my “Advanced Nonfiction Workshopping” class for my final term at Southern New Hampshire University to end Cum Laude.

What’s next? I purposefully gave myself a couple of months to become a bit more stable and find a place to settle down before my Master’s program begins in late November. I am actually also working on a resume as well as writing my first book.

I hope your summer has been AMAZING! I can personally say that this was one of the best years of my life so far! I hope the rest of your year is full of Love and Lighte!

Continuing My Education

For the last six months I struggled with the decision whether to continue into a graduate program or to be satisfied with the Bachelor of Arts that I will be finishing at the beginning of September 2017. Although I LOVE writing, without a best-seller (sometimes even WITH), it is difficult to support oneself writing books let alone to have the funds to support my dreams of helping others. In the middle of the night a few days ago, I felt a light and an idea: Master of Arts: Health Communications.

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After that late-night epiphany, many things came together quickly. I applied, submitted my writing sample (an edited version of “Making Our Mark” without the run-on sentences) and statement of purpose…and waited.

 

Today I received the news: I have been accepted to Southern New Hampshire University’s Master of Arts Communication – Health Communication program!!!!

For years my physical and mental disabilities combined with my lack of higher education have stagnated my growth. I resigned myself to collecting a disability pension even though the lack of being able to help others was frustrating to no end.

As long as I can remember, I have wanted to help people improve their health. As a child I was more focused on their pets and livestock, being enthralled with James Harriott and his novels. As I grew, I dreamed of being a surgeon for humans. However, difficult choices after foolish ones when I became a parent at 17 caused me to rethink that path.

IMG_20170623_133610I first trained as a medical assistant and worked in that profession to support my young family. When my first disabling injury made me unable to work in the medical field, I was devastated.

Even after I left healthcare as a profession, as a mother, wife and disabled person, I found myself constantly performing research into medical subjects. My writing talents have enabled me to share the information gathered with others on my blogs as an attempt to assist them in their own struggles.

Continuing my education with a Masters in Communication focusing on healthcare communication will add authority and legitimacy to this passion I have for helping others. It will enable me to assist more people to take charge of their own health and heal.

My first book, currently in the works, is titled “Medical Marijuana for Mormons” and it addresses cannabis treatment in a population consisting of many who would not normally pick up a book on this subject. As more members of The Church of Jesus Christ of Latter-day Saints are searching for alternative healthcare answers, my book will be there to help guide them.

My dream is to open disability/addiction recovery centers across the nation focusing on a holistic approach to chronic pain and disability that assists patients in recovering from the destructive influence opioid medication has had on their lives. The focus will be on re-educating patients in every aspect of daily life. Teaching them how to grow their own food and herbal medicine and helping bring them out of their sick beds and back into a life they want to live. An advanced communications degree focusing on healthcare will assist me in making my dream come true.IMG_20170623_133224

I have enjoyed immensely the Southern New Hampshire University community and the support I have received during my undergraduate program and would not feel nearly as “at home” in any other school. I am excited to continue in my education with SNHU and look forward to being able to help many people with the knowledge I will obtain there.

Today is the first day of the rest of my life!!!