One part that hasn’t always been the most fun about living in the Pacific Northwest, is that there is rarely snow. We get a couple of inches here and there, usually in November and February. I gave birth to both of my February babies during snowstorms in 1986 and 1990. I love the snow.
I didn’t love being without power during the snowstorm for most of the weekend. But I did capture a good amount of pictures for all of my readers! Now that the snow has evolved into huge piles of slush making everyone’s lives torturous…Enjoy these memories of the snowpocalypse!
About a week ago, I asked my therapist how long this particular Major Depressive Episode had been going on. Without a pause, she answered, “Since the summer.” I could have saved a bit of time and checked the publication date of my last blog post — on ALL of my blogs. I have not written except for assignments for school, since summer.
“Since summer,” the words rang in my head.
I thought back to summer. My summer was great! In July three grandmas (including me) took four grandkids on a ferry boat to Vashon Island where I spent some of my teen years. Then, in August, my mom and I trekked to Alberta, Canada to see the area where her mother was born. We also drove back through the forest fires in British Columbia, resulting in my second case of pneumonia within a year. This time I was not to recover nearly as quickly as I had the previous Christmas.
As the infection abated in early September, I found I was not able to physically care for myself. The symptoms I thought were lessening from the Fluoroquinolone toxicity had started again to worsen while we were in Canada and kept getting worse until I could barely lift my left arm. My left shoulder was “frozen.”
I finally requested help. I had no idea AFTER you humble yourself and ask for help, it can take literally months before help arrives! I applied for home health care through the state process in early September. In November, my physician was fed up with the lack of movement on my case and made her own recommendations and referrals. It was interesting being the subject of “Adult Protection Services” at the mere age of 52.
“Carrie the Caregiver” and me celebrating “Blue Friday” #GoSeahawks
I sit here now, on December 15, finally having employed a wonderful home health care assistant with the help of my local assistance office. I have left a large part of my privacy and pride far behind as I am venturing into the life of having a “PCA” (Personal Care Assistant). But I am finding that I am also making some great new friends as well as getting my life back.
Another change will be coming soon. After suffering several significant falls (not just saying “hello” to my good friends–my walls), my doctor has suggested that I sit down. The pain, numbness, and weakness in the tendons of my feet and legs have progressed to the point where a powerchair has been prescribed. I will make sure to post with photos when it arrives!
Jaina Anita Ellen Capley Grandchild #4 (Photo by Siobhan Capley – Jaina’s mama)
This holiday season has been a dark one for me, but I am coming back into the light. This will be the first Christmas for my newest granddaughter, Jaina Anita Ellen Capley, and I plan on enjoying her and the rest of the grandchildren to the fullest!
I hope everyone reading this has a wonderful holiday season. Please don’t let the shadows pull you in.
The bright sunlight through the burgundy bedroom curtains made the dark bedroom seem like a redlight district. I’d been living out of bed for over seven years as of 2009. Brief weekends out of bed were followed by weeks of recovery from the exertion. I curled up in a ball around a tiny screen where I would communicate with my friends on Facebook. My phone was anything but smart, and it cost a modest extra fee to be able to have web service on it. But the access to a society who would laugh at my ironic jokes and understand my pain when I couldn’t sleep at 2 am was something I deemed a justifiable expense.
My daughter had been accepted at the University of Washington in the Fall of 2008 and as part of giving their students a way to get to know their roommates, the school suggested new students start a Facebook account. When my daughter was home for winter break, we sat together on my bed as I signed up for my own account. I thought it would be a great way to keep in touch with the daughter I missed.
Some of my friends are quite witty. One of those friends had acquired friends from the online community, meaning “friends” he had never met in person. At first, I was very apprehensive about accepting “friend requests” from people I had never met. But soon conversations and jokes carried over from the friends I did know in person and
Me & Maria Mills Greenfield (who passed 1-19-2017)
I felt like I knew people from places across the country and even the world. Places hundreds of miles from any I had visited.
While laying in bed in pain, I composed quick thoughts and shared them. It became a release. When people began to respond, I felt I had found friends in the darkness. I connected with other people who were isolated for different reasons. Many of us were dealing with pain. Chronic, neverending pain.
While certain members of the federal administration seem to do anything EXCEPT validate chronic intractable pain, that type of pain is exactly what isolates and literally cripples people, making them incapable of living their previous lives.
Many people responded to the dark comments my mind and thumbs combined to leave on other people’s posts. Quickly I accumulated a large list of friends.
In October 2010, I decided I would rather take up my friend’s offers across the country to stay a day or a week, rather than rent a room in the gray dark winter of western Washington. I had only seen a few states of the country I lived in and a divorce after over 20 years of marriage was a great reason to explore. Many of my friends made plans to welcome me.
This last week, I lost another friend. It seems the death notices come more frequently now than they ever did. Many of the friends I met during my travels during the years from 2010 to 2017 are no longer around. Their absence in mortality does not lessen their effect on my life. In fact, the more friends who pass, the more grateful for all of them and the ways they changed my life and my attitudes.
Vin Arnone (2014)
At some point, I will write a detailed memoir, introducing you all to each of them…those who are no longer here. For now, I will say, I would not be around if not for my friends. My friends on social media pulled me out of several seasons of depression. These same people called 911 in 2009 when I was suffering withdrawals after a doctor prescribing me Fentanyl and Percocet discharged me without notice. My friends have saved my life in many ways and on many occasions.
Because I have been the recipient of such generous attention, I know the power of social media. I know when you just need someone to talk to, usually, there is someone at the other end when you enter social media. But I also know electronic connections are not substitutes for in-person socializing. They can supplement it very well, but at some point, my brain needed to meet the people I was talking to on the other end of the data stream.
Being disabled, to be able to afford travel, I sacrificed having a home to come to when I was not traveling. For the most part of seven years, I lived without a permanent dwelling. This was an experience of its own. I am in the midst of writing a book about a part of that experience, The Car That Ran on Prayers.
Many of the people I met in person during my travels joined me online to watch how my journey continued. When I finally made the decision to come inside and begin the task of documenting it all, many of my friends and family nearly cheered with relief. It had been a long seven years for all of us.
I reached out of my bed into a world I had no idea where or if I belonged in. Then, as I traveled, I began to reach into the people who reached into me when I was reaching out.
I have visited my friends, sat on their beds while they were curled up in pain. I love them all. I love those who have passed, and those who are still here. I love those who no longer consider themselves my friends. I love those who try harder every day, and I love those who just want a break and take it.
On the occasion of saying farewell to yet another friend, I can only reflect on all of my friends and the wonderful ways in which they have all expanded my world. I look forward to being reunited with them, and you, all when we are done on this side of the veil.
For now, I recommend calling a friend. Someone you know who gets lonely. Don’t worry, they will forgive you for not texting first. Too many of us are lonely in a world of friends.
Rest in Peace, Vin, Maria, Stephanie, Dana, Lisa, Bobby and so many more. I’ll see you on the other side.
One week ago today, my fourth grandchild was born. She is the first child of my last child; the baby girl of my baby girl. Yes, I am a happy grandma and a very proud mama, but why does being a Grandma mean more to me than any other role I have ever held? I would say that most likely has something to do with my Grandma, my namesake, Margaret “Ellen” Savage Rebman.
We learn by example. I learned much from my childhood and my grandparents. Both of my grandmas were named Margaret, but my mother’s mother used our mutual middle name as her first. Everyone called her “Ellen,” but for me and three other very special children, she was “Grandma.”
“Grandma King” as a child
My father’s mother had experienced a severe car accident in a Mustang convertible that left her in a wheelchair for as long as I can remember. My childhood memories of visiting “Grandma King” as she would be known for the last surname she acquired by marriage, were filled with the strange smells and sights of retirement homes. I wish I would have had a chance to know the woman who I hear from my uncle spent summers vacationing in Canada hunting with my grandfather. But that woman was a distant memory by the time I was old enough to carry on a conversation with my Grandmother.
My mother’s mother was an entirely different story. My childhood memories are full of beachcombing trips and my first time on a salmon charter boat complete with my grandparents and mom.
My Grandma and Grandpa (Ellen and John) lived on the beach in a cove on Hood Canal at the base of Puget Sound in a little place called Union, Washington. It was a slice of heaven. They moved to Olympia to be closer to their great-grandchildren after my second child was born, but my memories of them were on the Canal.
Grandpa & Grandma and my boys 1987
A CB Radio handle she adopted fit her well, “Beachcomber” fit Grandma as well as “Monkey” fit me. Many of the summer days I spent with my grandma were on the beach in front of their home. Grandpa had built a dock jutting out of the bulkhead between their home and their neighbor’s summer home. It was the perfect place to fish off the end of and catch the ugliest fish you ever saw… but grandma’s cats loved them.
The cats grandma allowed me to feed my catches to were actually strays. As an adult I now realize being so close to the water, the only way to keep rats away was to keep cats around. My grandma was pretty smart that way about a lot of things.
Ten days before I turned forty, my second son and his girlfriend became the proud parents of a baby boy, Aydin. My first grandchild and only grandson to this day. He changed my life by making me a grandma.
Very soon after Aydin was born, his mother decided to continue her education. By taking a class here and there, she could continue to be active in school, yet still feel she was fulfilling her duty to her son. I agreed to help out.
The daily traveling to my baby grandson’s home, then taking his mom to school and spending time with him and sometimes my mother who worked on campus was an incredible opportunity to bond with my grandson. This also allowed Aydin’s great-grandma to see him much more than she would have had an opportunity to if we weren’t visiting her at work. A few hours a day, every weekday for a three month period of time, I had “grandma duty.”
In 2010, I finally had the opportunity to meet my twin granddaughters, Saphira and Serulea, daughters of my estranged firstborn son and his wife. They were just getting ready to turn two years old. The girls were living with their mother’s mother, Mary, and their little sister B.
Our visits have gotten more frequent over the years. Currently, we live only about a mile apart and we TRY to go to church together each Sunday. It is a crazy new experience for me to live just down the road from these now preteen girls and we are having a lot of fun getting to know one another.
As I held my daughter’s daughter last week… this precious new life… I reflected on what being a grandma means to me. What “duty” do I have to these little girls and one lonesome boy?
I am a different woman than I was when Aydin was born. Jaina’s grandma will not be the same woman Aydin’s grandma was. I’m eleven years older than I was back then. But I am younger.
When Aydin was born, I was living out of a bed. My arm always had a fabric band on it to protect him from coming into contact with the deadly narcotic that kept me able to be active at all. When Aydin came into the world, my body was heavily dependant on the pain management of opiates.
In 2009, when Aydin was three, I said farewell to opioids. It was “grandma duty” that got me out of bed during severe withdrawals and gave me the impetus to keep on trying. One week ago, I saw my daughter display more strength than I thought possible when from her tiny frame she gave birth naturally to the most perfect little angel I have ever met.
My grandchildren are my heart and soul. They are my mirrors. I anxiously await the journeys we shall experience together. I am just thankful to Heavenly Father I am here to be able to get to know these wonderful little people He has seen fit to share with my family.
When I returned to my home state of Washington in July 2017, my broken, disabled body was less able than it had been in years. My first order of business was to make appointments with both my primary care practitioner and my pulmonologist. My asthma had been flaring, causing me to spend at least one day in an emergency room each month to seek breathing treatments.
The result of my July visits was a diagnosis of pansinusitis with a complete obfuscation of ALL of my frontal sinuses. My prescriptions for my inhalers were renewed and I received two new prescriptions, one for a steroid, prednisone, to lessen the inflammation inside my sinuses and an antibiotic, levofloxacin, (generic for Levaquin) to clear the infection.
I was staying with a friend to help her pack and clean the house she was vacating and set about taking my first round of tablets hoping for a quick recovery. That night as I scrubbed the driving callus on my right heel that looked worse than it felt, I felt pain in my heel and ankle felt fragile and odd, but I didn’t do anything except note it in my journal.
The next morning, I felt like a train had hit my body and brain. My brain was confused and every muscle and joint in my body hurt. However, both of my physicians had made a point of telling me that the pansinusitis was “probably causing me considerable system-wide fatigue and pain.” So, I chalked up these symptoms to my body reacting to me stopping long enough to feel it.
As my body seemed to weaken, I was embarrassed at the lack of work I was physically able to complete. It wasn’t like me. Yes, I need to take a lot of breaks, but I am a bit of a perfectionist where it comes to packing and cleaning, and it was taking me hours and hours longer than it should have. I apologized to my friend.
About a month later, I revisited my pulmonologist who saw no improvement in my infection and again prescribed the same combination. Again, I took and finished that ten-day course. But my sinuses were still completely full and now my joint pain was even worse. Then my pulmonologist referred me to an ear, nose and throat specialist who prescribed Prednisone and Levofloxacin for 21 more days.
I couldn’t understand how a longer course of the same antibiotics I had been on was going to do any good, but I acquiesced took the prescribed medication once again.
I will add, when I filled my prescriptions at the Walgreens’s pharmacy, the only thing that was said to me was “do you want me to throw away all these papers,” referring to the medication information in the bag of my prescriptions.
Two days before my 51st birthday, I traveled to my medical clinic for a follow-up appointment with my pulmonologist as well as an appointment with a new primary care provider. I expressed to both physicians that I was experiencing a HUGE amount of pain in my joints and fatigue that caused me to feel like I had been hit by a semi-truck from the moment I woke each and every day. Each of my steps that hit the ground was followed by knives shooting up my heel and the back of my leg, then into my knee and hips. After a few feet of walking, I wanted to cry. The pain and swelling in my hands, wrists, and arms made any household chore next to impossible.
Braces made by my occupational therapist. I had to remove one brace to take the photo
Both mentioned they thought the tendinopathy I was describing and which my primary care provider had examined and verified in my hands, wrists, elbows, knees, and heels could be the reaction for which the Levofloxacin and its entire family of antibiotics was deigned to carry a “black box warning” from the Federal Drug Administration (FDA). A “black box warning” denotes a serious reaction history and a limitation from the FDA in a medication’s usage. In relation to the class of drugs of which Levofloxacin was a member, the warning was issued almost one year to the date of my exposure. It read:
“Because the risk of these serious side effects generally outweighs the benefits for patients with acute bacterial sinusitis, acute exacerbation of chronic bronchitis and uncomplicated urinary tract infections, the FDA has determined that fluoroquinolones should be reserved for use in patients with these conditions who have no alternative treatment options. For some serious bacterial infections, including anthrax, plague, and bacterial pneumonia among others, the benefits of fluoroquinolones outweigh the risks and it is appropriate for them to remain available as a therapeutic option.”
My pansinusitis was not anthrax or the plague…however, I have multiple antibiotic allergies and have reacted to many different medications. Due to this fact, my physicians rationalized it would be okay to risk my well-being because of an infection that was not fatal. In fact, I had that same active sinus infection for months before any treatment. However, after the prednisone and levofloxacin, I felt worse than I had EVER felt with the infection.
As days turned into weeks, then months, I started to cry when my feet hit the floor and it was not only not any better than the day before but felt like it had gotten worse. I was no stranger to chronic pain, having been through the gauntlet with chronic pelvic pain for decades and back pain for years. I had written REPORTS about chronic pain and cannabis. I KNEW the timeline of pain. I KNEW when pain becomes chronic, the brain changes. Although my body and brain had already gone through that process for a few injuries, I did NOT want that paradigm to repeat with BODY-WIDE pain!!
My nights were not restful at all. I would roll to one side and my elbow would feel like it was full of glass pieces and if I rolled onto it, they would only go deeper into my flesh… The other elbow was on fire. My wrists and hands swelled making typing insanely difficult as my Master of Arts program began in late November. Although I had some accommodations in place for my previously diagnosed limitations, I found myself utilizing the dictation software. It was frustrating and ineffective, to the point I reached out to an online group for my university and a wonderful undergrad student offered to type my dictation over the phone.
For the pain, I was limited to cannabis. I will not use opioids after having been in recovery from them for the last 8 years and the other issues with the other medications prescribed for pain are what caused my physicians to initially recommend cannabis as my medication.
I’ve been working on recipes for topicals and bath bombs with this pain. A foot soak with a tablespoon of cannabis-infused coconut oil and Epsom salt is a good substitute when I don’t know if I can pull myself out of the tub.
I wanted to do something more to assist my own recovery, but I feared to damage my tendons more. I read about microcellular damage inside of my tendons and feared them tearing or worse. I requested physical therapy for my body and occupational therapy for my hands to get me started. My psychotherapist was also used to assist with the mental confusion caused by the medication interaction/injury. Throughout this last December and January, I had therapy appointments three days a week! Still, every morning, as I put my feet out of bed and onto the floor, the pain would shoot up, and I would cry. Like the mercury in a thermometer that has been placed in boiling water, the pain shot up my heels. Yes, worse again.
I was in the middle of my finals week for that first term in my Master of Arts program when I woke up, put my feet on the floor, and …. It was about the same as the previous day. The next day, after my exercises and stretching, it almost felt better. I was reluctant to hope, but I had stopped crying. At this point, it had been over six months since the first prescriptions.
The occupational therapist confirmed the swelling in my forearm and wrist had lessened. Two days later, the physical therapist confirmed that my Achilles’ tendons had more movement. FINALLY!
I’m FINALLY on the road to recovery. I have never developed so much empathy, so quickly, for any group of people. I have many friends who have chronic illnesses that come complete with body-wide intense pain. I wish I didn’t have to know, but I do understand comprehensively at this point. I am looking forward to healing from this injury and spreading the word about this medication and its PAINFUL interaction with prednisone and some people’s chemistries! Levofloxacin is a BAD BAD DRUG!
Although I have talked a bit about the fact that I never wanted to be a “medical marijuana Mormon” or how I didn’t want my Testimony “tainted” green, I have not talked much (except by video) about why I willingly took on the moniker, “Medical Marijuana Mormon” at least in the choice of URL. (You can also reach this site by typing in MedicalMarijuanaMormon.com)
When I made the decision to purchase MedicalMarijuanaMormon.com as well as MaggieSlighte.com last January, I was taking a social media marketing class for writers in my bachelor’s program. I learned many techniques and improved some that I had already been working on developing.
I have been a “medical marijuana Mormon” since the day I was Baptized a Mormon, but it wasn’t until my own trial about the herb when I decided research I had performed might be useful to many other members of The Church of Jesus Christ of Latter-day Saints when making the decisions about using cannabis as a medicine for themselves or a family member.
Two weeks to the day from the date I received my Endowments in the Seattle Washington Temple, I fell profoundly backwards 10 feet from the top of an attic ladder, incurring a compression fracture of my T-11, essentially “breaking my back.” What few people in the church knew about me at that time is that I was a medical marijuana patient. I had been even before I was Baptized.
Before I was even interested in The Church of Jesus Christ of Latter-day Saints, I knew medical cannabis patients who were Mormon. In fact, the seventh legal patient in Washington State was a Mormon and was a dear friend of mine. From him I first heard the words “The Church says it’s an herb, treat it as such,” meaning that smoking it is discouraged, but ultimately the route of administration is between the patient (member), their physician and God.
Contrary to many beliefs, there are many and varied reasons that a physician may direct a patient to inhale their medication. Although “vaping” or vaporizing is preferred to smoking or combusting cannabis in the administration of the medication, inhalation can be useful when attempting to bypass competing digestive liver enzymes. The simple fact is that when inhaled, the liver is not involved in the absorption and for many reasons this can be helpful. But I digress. I will be including information about this in the book I am currently working on, Medical Marijuana for Mormons: Cannabis sans combustion. Topicals are a great option for patients needing to avoid the liver-involved administration as well! In fact, topicals are the least-used and most effective forms of cannabis medication!
When I broke my back, my cannabis use came “out of the closet” during an interview between myself, my husband and our Bishop. When the Bishop offered to help find a program to assist with the costs of my prescriptions, he soon realized that wouldn’t be possible. I had been in recovery, off the opioid medications Fentanyl, Percocet and Vicodin which I had been prescribed for over 7 years between 2002-2009, for five years. My physicians all agreed: I couldn’t take opioids even for the back pain. I was recommended a strong preparation of cannabis oil and given muscle relaxers as well.
My Bishop was new to this country and to the cannabis laws. My state had recently legalized “recreational cannabis” and that seemed to confuse things with the Bishops even more. He referred the matter to our Stake President. The Stake President in the Centralia area had been in place for over a decade. His politics were not liberal in the least. He had NO love for cannabis.
My Bishop was directed by the Stake President to take my Temple Recommend.
I was devastated.
As the Bishop took the Recommend from my hand, I saw the tears in my eyes echoed in his own. Neither of us felt The Spirit in the action, but we would both be obedient. He obediently took my Recommend, I obediently gave it.
An interjected third person in the equation was my non-Priesthood holding husband of the time. He was offended and he was loud about it. He made a point to tell anyone who would listen that we were forced to kill our plants and shop from the local dispensaries instead of growing our own which was a much more affordable option available to us legally in our state as patients.
It didn’t matter how patient I attempted to be while I healed from my back injury, the scenes that my husband made at church became embarrassing. His actions did NOT echo my feelings. I knew it would be resolved in God’s time. But the husband I was married to then didn’t believe in waiting for God for much of anything.
Late in August, after being without my Temple Recommend for about a month, Stake Conference was held in Centralia, Washington. I invited a good friend of mine who is “fifth-generation LDS,” and was thankful for his perceptions. Elder L. Tom Perry had celebrated his 92nd birthday that week. We didn’t know that would be his last birthday on this side of the veil.
Elder Perry was a giant of a man standing at the podium I peeked in from the door at the side of the chapel. I stayed in the foyer contained within my steel cage of a back brace with the walker that I still depended upon. I was happy with my viewpoint as the Stake appeared to receive a rebuke. He gave us a lesson in who reports to whom in the Priesthood offices. He tested the Priesthood holders in their knowledge of their duties and charges. He taught us all with an abundance of love. Elder Perry taught us about obedience. Then he replaced the Stake President, informing us of Brother Smith’s call to the Stake Presidency. President Smith’s day job was an FBI agent. He worked for the Federal Government.
I can’t remember if it was the next Sunday or the Sunday thereafter when my Bishop called me to his office and joyfully handed me my Temple Recommend back. We had both survived the trial.
I learned a lot during that trial. I received a Priesthood blessing when I fell. That blessing, given by the Elders of the Centralia Ward in late May 2014 on my mother’s front lawn while I lay on a gurney ready to be loaded up into the ambulance that awaited, specified that I needed to follow my physician’s advice and I would be healed. I followed the advice of my doctors and I endured a trial of my faith, and I healed. I learned to walk again and I live to this day with about the same amount of “able-ness” as I had previous to breaking my back.
I was left with the feeling much of the research I have performed in my own health-information-gathering could be very useful to others. I was also left thinking about the number of children who are finding relief from severe epilepsy and violent forms of autism with cannabis medications. I decided at that point to write a book called Medical Marijuana for Mormons: Cannabis sans combustion, both to educate other Latter-Day Saints about the herbal medication but also to help those who were in the process of a trial or making the decision to move to an area where the herb is legal for medical use.
I have completed the outline and a few of the chapters. Research for the book is ongoing due to the fact that new studies are coming to light daily about the botanical medication.
Being a “Medical Marijuana Mormon” doesn’t mean my testimony of Jesus Christ, Heavenly Father and the Holy Spirit is any less. My testimony is strong. I know my Heavenly Father knows and loves me and created me exactly the way He wanted me. He is the reason I want to share what I have learned about this herb He created. I know His love is in the compassion that people who are in pain feel from this plant. I know it is a gift from Him. It is my job to do my utmost to educate myself and others through publishing this book.
Today marks one year since I woke up, preparing for one of the most difficult days of my 50 years, and saw the news a dear friend, Maria Mills Greenfield had passed away. Although my plans had included stopping to see her again when I reached Florida, I would, instead, cry my eyes out watching her funeral on her pink iPhone in the company of her dear widower once I reached that state. But I had more to do in Arizona before I could leave.
Me & Maria 2011
I prepared for court and to leave Arizona with my traveling companion and friend, Jacob. Then went to have my hair cut, and proceeded to the Apache County Courthouse in St. Johns, Arizona to the divorce hearing where I was informed as soon as we each received our copies of the papers, my second divorce would be final.
I never received the decree. The papers that would “mark the finality” never were delivered to the mailing address I left. So, I called from the beach at Boca Raton the day before what would have been our third anniversary and was informed that as of February 13, 2017, I was officially divorced. Once again.
I remember distinctly feeling like a failure. But at what? At being loved? I don’t think he ever did. A year ago I was still angry. I was more than angry; I was hurt. I didn’t understand how someone could treat another person the manner in which I was treated during my marriage to a man who swore he loved me. It was all confusing.
After spending a year on my own, undergoing a few months of therapy and pondering for even longer than this year, I am so thankful that I have moved on. The marriage, Arizona and the entire experience just seems to be a “part of my trip.” Seven and a half years I went out searching for something. I found so much. I found my way to my Heavenly Father, I learned unteachable lessons about people, hearts and places. Most of all, I learned about myself. I am continuing that task.
I am also continuing my rehabilitation process. After a total of seven years in substandard homes, living in broken down RVs in the middle of nowhere full of mildew and molds, my allergenic body reacted. I ended up being diagnosed with asthma. It has been an interesting road as an adult asthmatic these last couple of years. I have learned that my health is much more frail than it was before I traveled.
I did not stop experiencing challenges when I came back to Washington. I will be writing about my reaction to a common antibiotic on this blog soon. It has effected the frequency in which I have been posting. I will be writing about that situation in depth soon. But I will not let it or anything else silence me.
On this anniversary of a painful day that was ultimately full of release… I release any and all hate or anger I may have held towards my second ex-husband and his partner. I’ve got no time for bad feelings. I have a wonderful and exciting life ahead of me… watch out world, here comes Maggie!
Love and Lighte from Maggie Slighte!
(Click here to watch a current video about what my life looks like NOW!)
On my other page Slightely Mormon, I am sharing 25 days of service in scripture form. The Church of Jesus Christ of Latter-day Saints has once again put out a program full of wonderful videos and ideas about how to serve our fellow humans on this planet.
Some of the ideas that have been shared already are intriguing. Mormon.org put out a video showing a special vending machine that the church had built to allow people to donate everything from chickens to towels to people in all areas of the world. All around the social media outlets, the #LightTheWorld hashtag is taking over the netwaves.
I am happy to be a part of this effort. I have never written blogs for every day of a 25 day stretch and writing extensively is not likely, but I am pleased to share the images I am creating with photos I have taken.
As the days progress, I am eager to observe the varied projects that people come up with to serve others. I think this is going to be a particularly enLightening December!
The day after my 51st birthday at 6:19 pm, I was sitting at my dining room table contemplating what I should make for dinner. I nearly jumped out of my skin when the antique telephone ringer that signifies someone is calling my cellphone broke the silence of the small apartment. I looked at the number, it wasn’t saved in my contacts and it was from an area code a few miles north… probably a telemarketer or bill collector I surmised and decided to answer it just to make sure I knew which before saving and blocking the number.
“Hello?”
“Hello, is this Margaret …?”
“Yes, who is this?”
“Hi Margaret, this is the Mammography center at Virginia Mason in Federal Way. I’m calling to …”
Her words faded into the ether as my mind raced. I had my mammogram like always just before my birthday. It was an easy way to remember. Now, only two days later, they were calling me about something?!
The sweet young lady from the radiologist office was impervious to my reaction on the other end of the line. She proceeded to inform me that I didn’t have anything to be concerned about, they just needed a few more images and an ultrasound to clear up an area on my mammogram. It was scheduled for 7:30 am on the next Thursday.
I would have almost a week to think about it.
The days went by at a snails-pace while thoughts flooded my mind. I didn’t tell many people for a few days. I didn’t want the people who loved me to have the same racing thoughts that I was having; I didn’t want anyone to worry.
Thoughts about the cancers that run so rampant throughout my mother’s family. Thoughts about my mother’s cousin who just fought breast cancer last year… and not to be forgotten, thoughts of my dear friend Maria Mills Greenfield who lost her fight with metastatic breast cancer on January 19th of this year.
I sought relief of my racing thoughts. I needed comfort. I prayed to my Heavenly Father and He filled me with peace. Divine peace. I knew at that point that all was okay; it was just a scare.
Once I received that comfort from the Holy Spirit, I shared the information with a few people that I would be having a “re-mammo.” A few days later, right before my appointment… I decided to share some of my activities at my reaction through twitter:
After getting notice of an abnormality on a mammogram, is it normal to take that breast out and examine it with a fine tooth comb?! #Where?
I was finally ready to talk about what I was going through.
My friends responded on the post that was echoed on my Facebook account, concerned. I tried to reassure those I could by telling them I felt it would be okay. But I just wanted the re-mammo to be over.
Thursday finally arrived and I awoke at 4:14 in the morning, six minutes before my alarm. My dogs were surprised when I turned on the light in the bedroom and began getting ready.
We were loaded into the van before 6. I nervously adjusted the radio to a station that would include a traffic report about the highly congested area of Joint Base Lewis McChord that I would have to travel through to get to my Federal Way radiologist. Singing along to the country song they were playing, I pulled out and headed into the darkness of the morning.
Thanks to an absence of collisions, we got to Federal Way about a half hour early. I poured some water for the dogs in their van-dish and assured them I would be ‘right back’ and headed into the clinic.
There was no line at the radiology check in counter and the receptionist told me to have a seat, they would be “right with me.”
I scrolled through Facebook and read email for the longest half hour wait I had in a long time. Finally, at 7:34 am, I was called back to the exam area.
The young lady who was in charge of taking the extra views of the mammogram was very soft spoken and gentle. I wondered to myself how many times she has to do extra views and if it is difficult on her when there is more obvious issues. She left the room as I undressed from the waist up and put on the gown open in the front.
I could see from the displayed previous image of my mammogram displayed on the monitor that they were focusing on a tiny area that just looked like a blur to me. The young lady was gentle as she manipulated my right breast into the correct position for each image.
After changing out the supports a few times and taking several additional images, she asked me to wait while she delivered the images to the radiologist for her to look over. Another long wait, so I took a few photos around the room.
She came back and informed me she needed more views and changed the supports again on the mammogram machine. After she was done, I waited once more. Finally she returned and asked me to follow her into another room where she passed me off to another young lady for the ultrasound.
I was quietly thankful that everyone I was dealing with were female. Apparently the radiologist was female as well. At least that fact was reassuring. I lay down on the table and put my right arm over my head as she squeezed the cold gel onto my right breast and began the exam.
The ultrasound tech explained that she would be taking a few images and measurements, then she would be going out to get the radiologist who wanted to take a look herself. The exam didn’t take long at all. Before I knew it, the tech stepped out and almost immediately back in with the young radiologist with long dark hair. Her words were also quiet and kind, making me think that she had to tell much harder news to other women often.
The radiologists words were reassuring as she informed me the spot they needed more information about was just a tiny little tangle of blood vessels that wasn’t very clear in the mammogram. She reminded me that I have fibrous breasts and told me it would be a good idea for me to continue getting the 3D mammograms, my next being needed in a year.
As I was leaving, I saw a sign reminding me it is breast cancer awareness month in October. This October I am feeling VERY aware. Very aware and very thankful that breast cancer is not currently one of my challenges. My heart and prayers are with all of those who do have and have had breast cancer. I am also much more empathetic now about the scares that many of us go through.
A couple of days ago I signed the first rental lease I have signed in over 15 years. I was handed the keys to a small one bedroom apartment in the same complex where I had rented my first apartment 31 years before. It felt very circular, almost as if God was giving me an opportunity to try again.
This time I am on my own. Yes, I have my dogs, Athena and Ruger Bear (who turns a year old in just a few days!), but before now I had NEVER lived without other humans. When I first moved into this complex 31 years ago, I was a young working single mom with two preschoolers. My sons were only 2 and 4 years old when we moved into the larger two bedroom unit that I now look upon every time I come out of my stairwell.
My memories of this area and this complex are all good ones and I am very happy to be making more on my own now. I was drawn to this area, the same where I was born, because of many reasons. My only family who are members of the church I attend are in this area and I love to be able to share my Sundays with my granddaughters and Sister grandma. It is also centrally located with most of my close family being in this general area.
Seven years ago exactly, I made the decision NOT to confine myself to a rented room in a new friend’s home. This year I made a very different decision, I decided to go inside. I am tired. It’s been a long seven years. I have traveled across the country more times than I can count. I have loved, I have lost, I have met more people than I could have ever imagined. I have made friends across the country and around the world. I have been hurt, I have felt joy, I have seen and done more of life than I could have ever imagined in seven years. Now, it is time to write it all out. Having a place to be comfortable while I do that is crucial.
My physical health was made tremendously worse by my choice of living situations. Major mold exposures combined with allergies and asthma to cause me sinus and lung issues that are currently being further evaluated. In consideration of my mental health, I was finally able to find a therapist who takes my insurance and is close. Everything is coming together.
Now comes the writing of the books in earnest. Two have been outlined and started, with a couple of chapters being written while on the road. I appreciate greatly not only all the support and assistance that friends and my church have given, but especially the prayers. God knows my name. It is HE who I have to thank for all of these wonderful blessings that have been bestowed upon me by His human angels.
I hope everyone has the opportunity to feel this blessed once in their lives!!!
but why does being a Grandma mean more to me than any other role I have ever held? I would say that most likely has something to do with my Grandma, my namesake, Margaret “Ellen” Savage Rebman.
In 2010, I finally had the opportunity to meet my twin granddaughters, Saphira and Serulea, daughters of my estranged firstborn son and his wife. They were just getting ready to turn two years old. The girls were living with their mother’s mother, Mary, and their little sister B.
In 2009, when Aydin was three, 
As my body seemed to weaken, I was embarrassed at the lack of work I was physically able to complete. It wasn’t like me. Yes, I need to take a lot of breaks, but I am a bit of a perfectionist where it comes to packing and cleaning, and it was taking me hours and hours longer than it should have. I apologized to my friend.
For the pain, I was limited to cannabis. I will not use opioids after having been in recovery from them for the last 8 years and the other issues with the other medications prescribed for pain are what caused my physicians to initially recommend cannabis as my medication.
Contrary to many beliefs, there are many and varied reasons that a physician may direct a patient to inhale their medication. Although “vaping” or vaporizing is preferred to smoking or combusting cannabis in the administration of the medication, inhalation can be useful when attempting to bypass 
Being a “Medical Marijuana Mormon” doesn’t mean my testimony of Jesus Christ, Heavenly Father and the Holy Spirit is any less. 
I remember distinctly feeling like a failure. But at what? At being loved? I don’t think he ever did. A year ago I was still angry. I was more than angry; I was hurt. I didn’t understand how someone could treat another person the manner in which I was treated during my marriage to a man who swore he loved me. It was all confusing.
Thoughts about the cancers that run so rampant throughout my mother’s family. Thoughts about my mother’s cousin who just fought breast cancer last year… and not to be forgotten, thoughts of my dear friend 
The young lady who was in charge of taking the extra views of the mammogram was very soft spoken and gentle. I wondered to myself how many times she has to do extra views and if it is difficult on her when there is more obvious issues. She left the room as I undressed from the waist up and put on the gown open in the front.
The radiologists words were reassuring as she informed me the spot they needed more information about was just a tiny little tangle of blood vessels that wasn’t very clear in the mammogram. She reminded me that I have fibrous breasts and told me it would be a good idea for me to continue getting the 3D mammograms, my next being needed in a year.
Seven years ago exactly, I made the decision NOT to confine myself to a rented room in a new friend’s home. This year I made a very different decision, I decided to go inside. I am tired. It’s been a long seven years. I have traveled across the country more times than I can count. I have loved, I have lost, I have met more people than I could have ever imagined. I have made friends across the country and around the world. I have been hurt, I have felt joy, I have seen and done more of life than I could have ever imagined in seven years. Now, it is time to write it all out. Having a place to be comfortable while I do that is crucial.
I hope everyone has the opportunity to feel this blessed once in their lives!!!