The bright sunlight through the burgundy bedroom curtains made the dark bedroom seem like a redlight district. I’d been living out of bed for over seven years as of 2009. Brief weekends out of bed were followed by weeks of recovery from the exertion. I curled up in a ball around a tiny screen where I would communicate with my friends on Facebook. My phone was anything but smart, and it cost a modest extra fee to be able to have web service on it. But the access to a society who would laugh at my ironic jokes and understand my pain when I couldn’t sleep at 2 am was something I deemed a justifiable expense.
My daughter had been accepted at the University of Washington in the Fall of 2008 and as part of giving their students a way to get to know their roommates, the school suggested new students start a Facebook account. When my daughter was home for winter break, we sat together on my bed as I signed up for my own account. I thought it would be a great way to keep in touch with the daughter I missed.
Some of my friends are quite witty. One of those friends had acquired friends from the online community, meaning “friends” he had never met in person. At first, I was very apprehensive about accepting “friend requests” from people I had never met. But soon conversations and jokes carried over from the friends I did know in person and
I felt like I knew people from places across the country and even the world. Places hundreds of miles from any I had visited.
While laying in bed in pain, I composed quick thoughts and shared them. It became a release. When people began to respond, I felt I had found friends in the darkness. I connected with other people who were isolated for different reasons. Many of us were dealing with pain. Chronic, neverending pain.
While certain members of the federal administration seem to do anything EXCEPT validate chronic intractable pain, that type of pain is exactly what isolates and literally cripples people, making them incapable of living their previous lives.
Many people responded to the dark comments my mind and thumbs combined to leave on other people’s posts. Quickly I accumulated a large list of friends.
In October 2010, I decided I would rather take up my friend’s offers across the country to stay a day or a week, rather than rent a room in the gray dark winter of western Washington. I had only seen a few states of the country I lived in and a divorce after over 20 years of marriage was a great reason to explore. Many of my friends made plans to welcome me.
This last week, I lost another friend. It seems the death notices come more frequently now than they ever did. Many of the friends I met during my travels during the years from 2010 to 2017 are no longer around. Their absence in mortality does not lessen their effect on my life. In fact, the more friends who pass, the more grateful for all of them and the ways they changed my life and my attitudes.
At some point, I will write a detailed memoir, introducing you all to each of them…those who are no longer here. For now, I will say, I would not be around if not for my friends. My friends on social media pulled me out of several seasons of depression. These same people called 911 in 2009 when I was suffering withdrawals after a doctor prescribing me Fentanyl and Percocet discharged me without notice. My friends have saved my life in many ways and on many occasions.
Because I have been the recipient of such generous attention, I know the power of social media. I know when you just need someone to talk to, usually, there is someone at the other end when you enter social media. But I also know electronic connections are not substitutes for in-person socializing. They can supplement it very well, but at some point, my brain needed to meet the people I was talking to on the other end of the data stream.
Being disabled, to be able to afford travel, I sacrificed having a home to come to when I was not traveling. For the most part of seven years, I lived without a permanent dwelling. This was an experience of its own. I am in the midst of writing a book about a part of that experience, The Car That Ran on Prayers.
Many of the people I met in person during my travels joined me online to watch how my journey continued. When I finally made the decision to come inside and begin the task of documenting it all, many of my friends and family nearly cheered with relief. It had been a long seven years for all of us.
I reached out of my bed into a world I had no idea where or if I belonged in. Then, as I traveled, I began to reach into the people who reached into me when I was reaching out.
I have visited my friends, sat on their beds while they were curled up in pain. I love them all. I love those who have passed, and those who are still here. I love those who no longer consider themselves my friends. I love those who try harder every day, and I love those who just want a break and take it.
On the occasion of saying farewell to yet another friend, I can only reflect on all of my friends and the wonderful ways in which they have all expanded my world. I look forward to being reunited with them, and you, all when we are done on this side of the veil.
For now, I recommend calling a friend. Someone you know who gets lonely. Don’t worry, they will forgive you for not texting first. Too many of us are lonely in a world of friends.
Rest in Peace, Vin, Maria, Stephanie, Dana, Lisa, Bobby and so many more. I’ll see you on the other side. 
Thoughts about the cancers that run so rampant throughout my mother’s family. Thoughts about my mother’s cousin who just fought breast cancer last year… and not to be forgotten, thoughts of my dear friend 
The young lady who was in charge of taking the extra views of the mammogram was very soft spoken and gentle. I wondered to myself how many times she has to do extra views and if it is difficult on her when there is more obvious issues. She left the room as I undressed from the waist up and put on the gown open in the front.
The radiologists words were reassuring as she informed me the spot they needed more information about was just a tiny little tangle of blood vessels that wasn’t very clear in the mammogram. She reminded me that I have fibrous breasts and told me it would be a good idea for me to continue getting the 3D mammograms, my next being needed in a year.
My thoughts and prayers right now are with Ms. Bleuel’s family and friends, and ALL of those who looked up to her. It’s okay to keep hanging on. Just because she couldn’t, doesn’t mean you can’t. Stay strong, we are ALL children of a Heavenly Father who loves us. Help is around the corner, just ask.
I see and feel the online community becoming more and more quick to judge. When I used the alliteration technique I was practicing for school to title a blog post, I was removed from a Mormon group on Facebook (
It could be argued that I haven’t experienced discrimination or nasty people being mean in person because I am not of a certain group or another. I beg to differ. I am a 
About 4 years prior to that breakdown, while I was still on Fentanyl, percocet, neurontin (gabapentin), and 16 other medications, a friend asked me if I had ever tried marijuana for my pain. I had used it as a teenager, then as a young adult when I wanted to drink and party with my friends, noticing it’s anti-emetic properties allowed me to drink when I was taking medications I should not have been drinking with (my bad!), but I had put my “stash” far away when I began having pain that completely ruined my life… overtaking every aspect, finally putting me in bed. It was in that bed that I lived. A life consisting of watching DVDs from the library (I could check out an entire season of a television program at a time) and Netflix. When I could focus. When I said to my friend, “but won’t it make me unable to do anything?” She told me to look around at my life. That was a sobering experience. 
were ready to put their license on the line by recommending it (the marijuana alternative to “prescriptions” due to the federal illegality it can not be “prescribed”). So, they referred me to a specialist that JUST recommended marijuana.
Harley Davidson (2002 Low Rider)! Riding on the wind was so much more freedom than I could have imagined. My disabilities still had me bed-bound 5/7th of the week, but for 2 days each week I felt like I was LIVING again!
The paramedics arrived, taking my blood pressure both they and I were surprised I was conscious: 50/30 are numbers I won’t forget. After they loaded me up and took me into the hospital, my husband at the time demanded my release before I could be admitted to a rehab, he needed me at home was the excuse. The nurses looked at me like a junkie. They all looked at me as an addict, not as someone who was dependant on a medication prescribed by the doctor… I felt lower than dirt and went home with a prescription of clonidine (a blood pressure medication to LOWER my blood pressure from the impending pain) knowing I would likely be committing suicide to take it.
My pain was MUCH better, lowering to about a 6 or a 7 within a half hour… then I began LIVING!!! Out of bed, I started looking around me to see what I was missing. I was missing out on LIFE!
Somehow, through the Grace of God, I was able to put my MASSIVE social anxiety aside and get on a train, then a bus and a plane, finally in my own vehicle to visit many of them. What I found was that all around the country there were people like me in pain physically and emotionally who needed a reason to live. A reason and a method to Stand Up To Live. That is why I travel to this day: To show it can be done.
