I lost my friend, my literary agent, and my religion in a few weeks. I was at a loss as to where my book would land…
Category: Online Community
The Ebb and Flow of Trauma
Trigger warning: Sexual assault June has once again arrived. One of my personalities deleted all of the social media apps … More
The Support of a Dazzling Community
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
The Value of Visibility
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of … More
What I Wish Everyone Knew About Ehlers-Danlos
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
Interviewed by Friends
When I made the difficult decision to leave the Mormon church, I knew there would be a few ripples from … More
Anonymous Until Consent:
Why I stopped sharing photos of my grandchildren with the public Many of my friends who follow my social media … More
Luered to TikTok for Advocacy
It was only days after my official autism diagnosis that I felt compelled to download and install an app I … More
Wait, Didn’t You Become A Nun?!
For over half a century of my life, I had been sexually attractive to someone. I just wanted that part to stop. I just wanted someone to see the daughter of God that I was, and not a piece of meat to use.
Life Behind the Signs
As many people whose families are in danger from this virus isolate, signs go up on their doors but life … More
Maggie Slighte 