When the call came, I jokingly repeated, “I told them to do the ultrasound while I was there, but they didn’t listen.”
Make-up for Lost Time
You would not be able to tell from most of the videos over the past year-But makeup is one of my special interests. I stopped wearing makeup while I was … Continue reading Make-up for Lost Time
Caring for Me
She was only 18 when she started-But our bond would grow tighter than I could imagine
The Quality of My Life
Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?
Teach Our Children Jobs
As I write this, more than 10 full-time home health care positions exist within a mile of my location and there is no one to fill them.
I was A Pregnant Teen in 1984
…The nurse then turned to my mother and asked if I was planning to give my baby up for adoption.
The Ebb and Flow of Trauma
Trigger warning: Sexual assault June has once again arrived. One of my personalities deleted all of the social media apps off of my phones overnight. A distinct sign that someone … Continue reading The Ebb and Flow of Trauma
The Support of a Dazzling Community
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
The Value of Visibility
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of my zipper pouch, purchased with gift card funds from the … Continue reading The Value of Visibility
Zebra Wrangling: Managing those pesky symptoms
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was born. It had been over a year since I had … Continue reading Zebra Wrangling: Managing those pesky symptoms