Before my Ehlers-Danlos diagnosis,Athena and I bent ourselves around one another to sleep. Before my ASD diagnosis, Athena helped me stim. Before my sensory processing disorder diagnosis, Athena helped me … Continue reading Before and After: A Poem
Category: Ehlers-Danlos Syndromes
Make-up for Lost Time
You would not be able to tell from most of the videos over the past year-But makeup is one of my special interests. I stopped wearing makeup while I was … Continue reading Make-up for Lost Time
Caring for Me
She was only 18 when she started-But our bond would grow tighter than I could imagine
The Quality of My Life
Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?
Wrapping Up A Month of Awareness and Preparing for Pride
It’s been a month! Thanks for connecting to me and for taking your time to read the posts I’ve shared. Below is the latest episode of my vlogcast with updates … Continue reading Wrapping Up A Month of Awareness and Preparing for Pride
The Support of a Dazzling Community
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
The Value of Visibility
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of my zipper pouch, purchased with gift card funds from the … Continue reading The Value of Visibility
What I Wish Everyone Knew About Ehlers-Danlos
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That is what doctors in training are taught. (To listen click … Continue reading Diagnosis: Zebra