She was only 18 when she started-But our bond would grow tighter than I could imagine
Category: Ehlers-Danlos Syndromes
The Quality of My Life
Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?
Wrapping Up A Month of Awareness and Preparing for Pride
It’s been a month! Thanks for connecting to me and for taking your time to read the posts I’ve shared. … More
The Support of a Dazzling Community
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
The Value of Visibility
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of … More
What I Wish Everyone Knew About Ehlers-Danlos
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
Diagnosis: Zebra
After lifetimes of confusing medical problems, an answer is now clear for many “When you hear hoofprints, think horses.” That … More
Maggie Slighte 