This year I created something special for my family, friends and connections-all in secret!

This year I created something special for my family, friends and connections-all in secret!
I lost my friend, my literary agent, and my religion in a few weeks. I was at a loss as to where my book would land…
She was only 18 when she started-But our bond would grow tighter than I could imagine
Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?
As I write this, more than 10 full-time home health care positions exist within a mile of my location and there is no one to fill them.
It’s been a month! Thanks for connecting to me and for taking your time to read the posts I’ve shared. Below is the latest episode of my vlogcast with updates … Continue reading Wrapping Up A Month of Awareness and Preparing for Pride
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of my zipper pouch, purchased with gift card funds from the … Continue reading The Value of Visibility
For the 23rd day of May’s Ehlers-Danlos Syndrome social media challenge, we are asked to share our greatest achievement. In a nutshell, I’d have to say that my biggest accomplishment … Continue reading My Biggest Achievement (So Far)
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
For the second year, Ehlers-Danlos awareness is my goal for May Last year I participated in my first Ehlers-Danlos Syndrome Awareness month with the goal of earning a pin for … Continue reading Meet Me: EDS in May