Processing this Diagnosis

I’m just saying it should not have been a leap that took more than half of a century to make. Why did it take a half of a century to make this leap? I daresay because I have a vagina.

My Bendy Brain: Mental Health and Ehlers-Danlos

Before I go too far, let me preface this. Unlike some of my articles that have been extensively researched, this one is primarily based on my personal experience and theories. Baby me I started out this world in 1966 in the home of two brand new parents. I confused them from the beginning. Immediately, I... Continue Reading →

A Balm for the Bruises and Bends:

Managing My Ehlers-Danlos with Cannabis I have made no secret of the fact that I endure a considerable amount of pain in relation to my Ehlers-Danlos Syndrome and the subsequent antibiotic injury. How do I manage my Ehlers-Danlos? That was a question, posed as a prompt for day six of Ehlers-Danlos Syndrome Awareness month. Day... Continue Reading →

Diagnosis: Zebra

After lifetimes of confusing medical problems, an answer is now clear for many "When you hear hoofprints, think horses." That is what doctors in training are taught. (To listen click here) Physicians are specifically trained not to think outside of the diagnostic box, then are confused as to why people with rare issues often do not get... Continue Reading →

Owning Her Stripes

For most of her life, she had experienced pain. Pain that other people said couldn't exist.

Autism Awareness: Accepting a New Diagnosis

April is Autism Acceptance (and Awareness) month. What better month to ask some questions of my therapist and get to the bottom of some questions I've had for a while? About a year ago, I started researching neurodiversity in all its colors and flavors. I discovered many things. Neurodiversity is categorized differently than a trauma... Continue Reading →

Waiting for a Home I Can Use

The reality of living in the Pacific Northwest as a disabled person during a housing crisis In October 2018, the day before my 52nd birthday, my doctor prescribed a power chair for my worsening disabilities related to my exposure to the antibiotic, Levaquin. I live in a low-income apartment complex in Olympia, Washington. They have a little blue... Continue Reading →

I Was Addicted to Milk

For weeks we worked with my physicians to discover that although my swallow reflex was completely intact, I could no longer feel that area of my throat, which caused me to panic.

A Power Chair Gave Me Back My Life

Walking hurt, so I stopped walking. When it stopped hurting as much, the pain was replaced with neuropathy and when I walked, I began falling. The day before my 52nd birthday, a powerchair was prescribed. I waited with bated breath for the freedom that it offered.

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