She was only 18 when she started-But our bond would grow tighter than I could imagine
Have you ever contemplated the worth of your life? What is my disabled life worth? Anything?
It’s been a month! Thanks for connecting to me and for taking your time to read the posts I’ve shared. … More
Without friends with Ehlers-Danlos that I’ve met online, I wouldn’t have the energy or knowledge to advocate for myself.
Why I Participate in Ehlers-Danlos Awareness Month It happened the second Friday of May. I was fishing money out of … More
In late summer 2018, I took a trip with my mother to Entwistle, Alberta, in Canada where her mother was … More
I posted a tip of the iceberg of what I want people to understand about Ehlers-Danlos to several social media sites early Sunday morning.
I have a few more to add now.
For Ehlers-Danlos Awareness month, we are prompted to share our paths to diagnosis for day fifteen. It was a dreary … More
For the second year, Ehlers-Danlos awareness is my goal for May Last year I participated in my first Ehlers-Danlos Syndrome … More