One year ago Sunday, I wrote an article about being injured by Levofloxacin, an antibiotic. Those who have been affected by this class of antibiotics, fluoroquinolones, refer to these injuries as being “floxed,” short for fluoroquinolone toxicity. The technical name for the syndrome of side effects I am experiencing over a year after taking my last generic Levaquin tablet.
At the time I wrote this piece, for the first time in months, I found myself able to stand on padded shoes in the morning without crying in pain from the searing and burning sensations on the soles of my feet. I could see a light at the end of the tunnel. Within a few weeks, I was certain that light had been the headlight of a train.
Although I had finished a course of physical therapy designed to teach me exercises to keep my tendons as limber as they could be through the changes in the mitochondrial DNA within my connective tissue. In reality, those exercises helped me to keep as active as I could as long as I could.
But the effects that started with fatigue and burning pain and stiffness in all of the connective tissue in my body didn’t stop in February when I wrote that piece. Yes, the pain in my feet began to lessen. But what replaced the pain proved to be more debilitating than the pain itself.
It was almost as if the nerves burned out. Fizzled out. In each of the areas of my body that had experienced extreme pain: First in the bottoms of my feet and my heels, knees, then my forearms, elbows, and shoulders I started to experience tingling sensations and dullness. Neuropathy.
Having neuropathy in my feet was not fun. While within my tiny apartment, it just became easy to fall into a wall and fall from wall to wall. I didn’t leave my apartment for much, so it worked.
In May, my newest granddaughter was born to my baby girl and her husband. Jaina has been a joy to visit with, but my limitations when holding her have broken this grandma’s heart. The strong arms that held my first grandchild 12 years ago now fatigue quickly and I am forced to give up holding her much quicker than I would like.
In August 2018, my mom and I went to Canada. On that trip that I was confronted with the difficult reality that I was perhaps more disabled than my 75-year-old mother. That was a difficult pill to swallow. It gets tough when you want to help your mom, but then she ends up assisting you. Realities can be uncomfortable.
When we returned the effects from driving through the smoke of several forest fires combined with me completely overdoing it to give me my second bout of pneumonia in less than a year. My body was done. I’m still getting over that illness. I have not recovered the level of mobility I had in August. In September I began the process of asking for help.
After last year’s post, I joined many support groups on Facebook for “Floxies.” They were the source of much information. The lists of supplements that could help are long and I won’t copy them here. They work for some, but not others. Personally, I have not been able to tolerate nutritional supplements, but I have received some soothing from apple cider vinegar and Epsom salt soaks on my feet.
The other medication I have used since before being injured by this antibiotic is cannabis. Please follow this link for the recipe I use to replace the Fentanyl and Percocet that doctors had my body dependant upon for seven years. I have been free of opioids for ten years this year. Even in level 8 pain daily, I have found combinations of types of cannabis that work to help manage my pain.
That being said, pain is never gone. Ever. It travels. I’m currently experiencing severe pain in my eyes when I focus. Tendons in the eye, or something else? I’ll go into my reflections on seeing in a future post. Pain is also currently in my toes and back and knee… not to mention that locked shoulder.
Better not to talk about it.
That is the best way I know to avoid feeling pain: Dissociation. I am a master at that. Or perhaps I should say ‘we are.’ Put the pain in a box and get on with life. My current hobby is Literary Theory class. Although the reading requirements make this eye thing quite annoying. Alas, I will be sharing audiobook resources soon!
It’s now been about 18 months since the first pill and the first symptoms. My physician prescribed a power chair in October due to my frequent falls. In November, on the 23rd, while a fall-detection device was on its way to my home, I had my first major fall, resulting in my left shoulder being frozen.
I’m currently in a portable wheelchair, borrowed, while I await the prescribed power chair on order. I don’t stand up and walk unless I am feeling extraordinarily strong and I have a caregiver by my side to make sure I don’t fall.
When I think back to my life, just 19 months ago… camping with friends by a river in a tent. Something I don’t know if I will ever be able to do again…thanks to an antibiotic taken for a sinus infection.